Welcome to
OUR MISSION
Chromosome 15 Disorders
C-15 Foundation’s mission is to provide a meaningful
and purpose-driven life to
individuals diagnosed with life-altering disorders of Chromosome 15.
Many of these diagnoses prevent a child or adult from leading an independent and
fulfilling life, relying upon the help of others.
C-15 Foundation was established to offer an alternative to these families, and for the ultimate betterment of people impacted by Chromosome 15 irregularities.
Prader Willi syndrome
Angelman syndrome
Ring 15 syndrome
Dyslexia
Autism
Trisomy 15 syndrome
Ring 15 Chromosome syndrome
Hyperlexia
Isodicentric chromosome 15
Bloom syndrome
Breast cancer
Isovaleric acidemia
Loeys-Dietz, type 3
Marfan syndrome
Nonsyndromic deafness
Schaaf-Yang syndrome
Tay-Sachs disease
Tyrosinemia
Autosomal Dominant Compelling Helio-Ophthalmic Outburst syndrome
The world can be a better place for people with PWS.
C-15 Foundation will make that vision become a reality.
About C-15 Foundation
Where Unlimited Potential Can Grow and Thrive
C-15 Foundation is a registered 501(c)(3). Our goal is to offer individuals challenged by Chromosome 15 imperfections personal independence and an opportunity for a more fulfilling life.
Thanks to the vision and dedication of the foundation’s supporters, C-15 Foundation will create a nurturing, best-in-class, live, work, play, learn and research community that would provide a meaningful and purpose-driven life to those individuals challenged by Chromosome 15 imperfections.
About PWS
Prader-Willi Syndrome
A genetic abnormality on chromosome 15 first identified Prader-Willi syndrome, a lifelong condition, in 1956 by Swiss doctors, A. Prader, H. Willi, and A. Labhart. Along with metabolism, growth and cognitive dysfunctions, additional challenges include hyperphagia (never feeling full) and behavioral issues, which require them to be constantly supervised.
C-15 Foundation’s vision is to create a fully-sustainable community that not only provides a place to live, but offers a true community and a chance for a better future for people who are challenged by PWS, as well as other Chromosome 15 disorders.
our Vision
Building a Better Place
for people with PWS
Following high school, most people living with PWS are left with only two options: to continue living with their parents or to move into a group home. Neither option is ideal.Â
C-15 Foundation was formed to offer an alternative for the wonderful people living with PWS, as well as other C15 chromosome disorders, and their families. We will offer residents a community-based, structured environment filled with social obligations, activities and other responsibilities to give them a more purposeful and meaningful life.Â
The world can be a better place for PWS people.
C-15 Foundation aims to help that vision become a reality.
The Community
Tour the Facility
C-15 Research and Medical Complex
In partnership with a major medical university, this first-of-its-kind facility will pursue a comprehensive understanding of various genetic defects on Chromosome 15.
On-site Sustainable Farm
The on-campus farm will provide continued learning and employment opportunities where residents will grow and harvest the same fruits and vegetables that will be served in the Dining Hall. Additionally, we hope to host a few farm animals including dogs and pigs, which will provide the residents something to care for and bring additional purpose to their daily lives.
Activity Center
Daily movement and exercises appropriate for individuals with low muscle tone are vital. The Activity Center will keep residents moving with a swimming pool, yoga room, walking track, and game room. With daily activity and calorie-burning goals, this requirement will contribute to overall healthier lifestyles for people with PWS.
Village Housing
C-15 Foundation plans to construct three, 8-unit apartment buildings connected to a common area with games and entertainment, providing community culture and a sense of belonging. Each private apartment will include a living area and individual bed and bathroom, giving residents a sense of home. These units will not include kitchens as all meals will be served in the secured Dining Facility.
Secure Dining Hall
All residents meals will be provided in the Dining Hall and will be portion-controlled and include many ingredients grown and harvested on-site. All meals will be natural and well-balanced following a low fat, low sugar, low carbohydrates, and high protein diet. This ultra-secure facility will help the residents understand that the dining room is only open for three planned meals daily and that food is not readily available on campus, the PWS mind can relax and thrive.
Continuing Education Facility
The C-15 Foundation aims to provide high school and continuing education to residents and other affected individuals for ten years post-high school. Meaningful daily courses will help to develop various skills beyond basic math and science which will help to develop a well-rounded individual with work and life skills.
Contact US
Interested in learning more?
please contact us using the form below.