Loeys-Dietz, type 3
Autosomal Dominant Compelling Helio-Ophthalmic Outburst syndrome
About C-15 Foundation
Where Unlimited Potential Can Grow and Thrive
C-15 Foundation is a registered 501(c)(3). Our goal is to offer individuals challenged by Chromosome 15 imperfections personal independence and an opportunity for a more fulfilling life.
Thanks to the vision and dedication of the foundation’s supporters, C-15 Foundation will create a nurturing, best-in-class, live, work, play, learn and research community that would provide a meaningful and purpose-driven life to those individuals challenged by Chromosome 15 imperfections.
A genetic abnormality on chromosome 15 first identified Prader-Willi syndrome, a lifelong condition, in 1956 by Swiss doctors, A. Prader, H. Willi, and A. Labhart. Along with metabolism, growth and cognitive dysfunctions, additional challenges include hyperphagia (never feeling full) and behavioral issues, which require them to be constantly supervised.
C-15 Foundation’s vision is to create a fully-sustainable community that not only provides a place to live, but offers a true community and a chance for a better future for people who are challenged by PWS, as well as other Chromosome 15 disorders.
Building a Better Place
for people with PWS
Following high school, most people living with PWS are left with only two options: to continue living with their parents or to move into a group home. Neither option is ideal.
C-15 Foundation was formed to offer an alternative for the wonderful people living with PWS, as well as other C15 chromosome disorders, and their families. We will offer residents a community-based, structured environment filled with social obligations, activities and other responsibilities to give them a more purposeful and meaningful life.